Directory of Patient Organizations

The RAANM is a regional non-profit organization founded in 1992 that contributes to the improvement of the living conditions of family caregivers, i.e. those who provide support and care to a family member, friend or neighbor (father, mother, spouse, etc.). The mission of the RAANM is to contribute to the improvement of the living conditions of caregivers.

The Regroupement Québécois des Maladies Orphelines (RQMO), whose foundation was announced on International Rare Disease Day in 2010, brings together rare disease associations, individuals or family members of individuals living with a rare disease and other people interested in the cause of rare diseases.

Save Your Skin Foundation (SYSF) is a national patient-led not-for-profit group dedicated to the fight against non-melanoma skin cancers, melanoma and ocular melanoma through nationwide education, advocacy, and awareness initiatives. Save Your Skin Foundation is committed to playing an active role in reducing the incidence of skin cancer in Canada, and to providing compassionate support for all Canadians living with skin cancers.

Since its inception in 1989, Scleroderma Quebec has become the leading source of French-language public information on scleroderma and support for scleroderma patients in Canada. A leader in funding cutting-edge scleroderma research, Scleroderma Quebec has contributed to date nearly $3 million in research support.

The mission of the Société québécoise de la fibromyalgie is to bring together and support regional associations that help people with fibromyalgia and their families, in order to better meet their needs. It promotes the sharing of information between associations, and raises awareness and recognition of the disease.

The mission of the Société québécoise de la schizophrénie (SQS) is to help improve the quality of life of people affected by schizophrenia and related psychoses, through educational and support activities, prevention and public awareness, participation in government policies and contributions to research, throughout Quebec.

Testicular cancer could be easily treated if people talked about it a bit more, if we got rid of the taboo, increased awareness, provided more information, and if support was provided to the men who do have it. We cover all those elements.

Our mission is to raise money for the Angelman Respite Center. The Angelman Foundation works hand in hand with the Quebec Angelman Society to accompany families, help and support in the diagnosis of their child and guide them to the best resources. The Angelman Society educates the public and the medical community and wants to be the unifying bond of Angelman families in Quebec.

The Anti-NMDA Receptor Encephalitis Foundation exists for all patients and caregivers, at all stages of illness and recovery. Together we will continue the battle, we will encourage those in the trenches, and we will fight for the memory of those no longer with us. Join us in our goals to promote awareness, provide support, and raise funds for research committed to understanding and ending this and related diseases.

We won't stop until there is a cure for leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative neoplasms and are able to improve the quality of life of people affected by blood cancers and their families by funding life-enhancing research and providing educational resources, services and support.

LDSF Canada has supported patients and their families in their efforts to raise awareness and funds in their communities, to benefit the Foundation. Our goals are to encourage education, foster research and provide support to patients and their families.