Directory of Patient Organizations

AFAT's mission is to help improve the quality of life of people living with fibromyalgia.

AFRM's mission is to help and support people suffering from fibromyalgia. Through support, information and even encouragement, the Association promotes self-management for people affected by this chronic illness. To accomplish its mission, it offers information, listening, activities and support to its members, helps to raise awareness of fibromyalgia among those around them and the general public, and forms support and self-help groups to meet the needs of sufferers and isolated individuals.

The Association de la neurofibromatose du Québec (ANFQ) is a non-profit association founded in 1989 to provide support for people with neurofibromatosis and their families, and to inform all those interested in this genetic disorder. Today, the ANFQ works to ensure that patients have access to appropriate health care, to spread knowledge and understanding of neurofibromatosis, and to raise awareness of the condition among the medical profession and the general public, particularly with a view to promoting research into treatments.

The Association de paralysie cérébrale du Québec is a non-profit organization recognized by both levels of government. Its objective is to defend the rights and protect the dignity of people living with cerebral palsy in Quebec. The Association aims to improve the living conditions and social integration of people living with this disability. It is therefore pursuing its efforts to provide them with all the means necessary to achieve this. The Association also aims to support the efforts of people with cerebral palsy and those who help them: parents, caregivers and volunteers.

The Association de spina‐bifida et d’hydrocéphalie du Québec focuses on self-help, prevention, information, finding solutions and support so that people living with spina bifida and hydrocephalus can lead an active life.

The Quebec Association of Immunodeficient Patients is a non-profit organization that brings together patients with immune deficiencies (ID), their families and health professionals interested in this disease.

F.L.A.M.'s mission is to do everything possible to promote help, mutual aid and support for burn victims and their families, with a view to their full personal and social rehabilitation.

We are committed to the well-being of people affected by cancer in the communities of Bas-Saint-Laurent, Côte-Nord, Gaspésie and Îles-de-la-Madeleine. That's why our mission is to humanize services for people with cancer and their loved ones, raise awareness of the risks of cancer and support the fight against cancer.

Since 1991, the Association de l'acidose lactique, a group of families affected by the disease, has been formed. Candide Caron, the little mother of Maxime, who died of lactic acidosis, initiated this project to bring together parents who have children with or who have lost their child to this disease. They are few but thanks to this association, they feel less alone and they can now talk about their child, talk about their daily life with this disease to other parents who understand. They also get together to find ways to make this disease known and to raise funds for medication.

Since 1960, the Association Québécoise de l'Épilepsie has supported and accompanied Quebecers living with epilepsy and their loved ones, raised awareness of the condition among the general population and contributed to scientific research efforts in neurology.

We offer support to people with trigeminal neuralgia in Quebec. The Association québécoise de la névralgie du trijumeau is a non-profit organization registered in Quebec since August 2005. The Association québécoise de la névralgie du trijumeau has also had charitable status from the Canada Revenue Agency since April 2006.

Our goal, inspired by our mission, vision and values, is to fully exercise our role as a hub for all matters related to palliative and end-of-life care in Quebec.