Subscribe to our newsletter!
Follow the latest news from CATALIS and Clinical Trials Quebec
Clinical Trials Quebec has developed an Information Hub that includes several Direct Services to Users designed to inform, mobilize and engage them in clinical research in Quebec.
Unless the context indicates otherwise, grammatical variations of any defined term shall have the same meaning, and the singular shall include the plural and the masculine shall include the feminine (and vice versa).
No Personal Information shall be provided as part of the Services, unless Users decide to disclose the Personal Information or when they wish to use the Support Service:
2.1.2 Comments, questions and inquiries: A User may decide to provide certain Personal Information (such as their name and email, and their opinion/observations) if the User contacts Clinical Trials Quebec to obtain information on its Services or any other topic. Clinical Trials Quebec shall use that Personal Information to respond to the User’s communication. Such Personal Information may also be used for other purposes.
2.1.3 Content: A User does not need to provide any Personal Information to consult the Content. However, certain information may be collected by Cookies, as described below.
2.1.4 Directories of patient organizations: A User does not need to provide any Personal Information to consult the Content. However, certain information may be collected by Cookies, as described below.
If new services are made available, further collection and processing of Personal Information may then be required. In such a case, Clinical Trials Quebec shall notify Users, as indicated in clause 7.1 below.
Certain platforms and technologies may provide information:
2.2.1 Google Analytics and Cyberimpact. Google Analytics may collect data on a User’s interactions with the Information Hub. Such information shall then be processed and updated at the User’s next interaction with the Information Hub. To do so, Google Analytics places codes on the Information Hub that enable it to see the information that was viewed, as well as the browser and device that were used. Similarly, Cyberimpact technology may be used to obtain information on the communications that were sent (e.g., to determine whether an email was read). The above information will be collected in a depersonalized manner and may be used for other purposes.
2.2.3 Information collected by Cookies and other technology. When a User accesses or uses the Information Hub, some information (e.g., regarding the browser that is used, the Internet Protocol (IP) address and the clicks/interactions that took place) may be collected using the following Cookies:
Other types of technologies may be used for the same reasons. Cookies and other technologies that are not essential (such as Analytics Cookies) may be blocked without any impact on the Information Hub. Blocking required Cookies (e.g., Functionality Cookies) may affect the Information Hub. These technologies and Cookies are temporary and will be removed once the browser is closed or the device is turned off. Anyone encountering problems may contact Clinical Trials Quebec.
3.1.1 Required disclosure to provide the Services: Personal Information may be disclosed to Semi-Web who assist Clinical Trials Quebec with the Information Hub. Such disclosure shall be limited to the Authorized Subcontractors who require it and are bound by confidentiality agreements, and shall be done in accordance with the law.
3.1.2 Corporate transaction/restructuring: Some Personal Information may be disclosed to a third party as part of a corporate transaction/restructuring if: (i) it is required to proceed with such restructuring/transaction; (ii) it occurs in such a way as to safeguard the privacy of the Personal Information; and (iii) it is done in accordance with the law.
3.1.3 Other: Personal Information may be used and disclosed by Clinical Trials Quebec acting reasonably, if the latter believes that this is: (i) required to comply with applicable laws, a legal procedure or government request; (ii) required to protect its rights; or (iii) otherwise permitted or required by law. Clinical Trials Quebec may also use, disclose or otherwise process any Personal Information as permitted by law, including for other purposes.
Users acknowledge and agree that Depersonalized Information (information that excludes their names or other identifiers) may be created based on the Personal Information, and used and otherwise processed for other purposes. Clinical Trials Quebec shall take reasonable measures to limit the risk that someone may identify a User based on the Depersonalized Information.
Clinical Trials Quebec has set up specific safeguards to ensure the privacy of the Personal Information that may be collected and that are reasonable given, in particular, its sensitivity, end use, quantity, distribution and medium. These safeguards include:
4.1.2 Restricted access: Subject to applicable laws, access to any Personal Information is granted only to employees and representatives of Clinical Trials Quebec (and, if applicable, the Authorized Subcontractors) who require it, following the implementation of safeguards and in accordance with applicable laws.
4.1.3 Privacy Impact Assessment: Privacy Impact Assessments are conducted when required in accordance with legislation.
4.1.4 Securement during transit: If a User sends a request as part of the Services requiring the disclosure of Personal Information (e.g., Support Services), an HTTPS protocol is used to transfer the information, and the Personal Information is protected through Secure Sockets Layer (SSL) technology using server authentication and data encryption. Activation of the technology can be confirmed by looking at: (i) the browser’s address bar, which will display, depending on the browser, a lock icon to the left of the URL; and (ii) the URL address or browser address bar, where the first characters should change from “http” to “https.”
4.1.5 Secure data centres: The Information Hub is hosted on a secure private platform supplied by a reputable IT provider.
EVEN THOUGH THE INFORMATION HUB WAS CREATED USING MARKETABLE TECHNOLOGIES, ANY TECHNOLOGY – AS WELL AS ANY OTHER SERVICE/PLATFORM OR METHOD OF DELIVERY – IS NEVER INFALLIBLE OR FULLY PROTECTED FROM UNPREDICTABLE EVENTS, CYBER ATTACKS (AND OTHER ILLEGAL ACTS) OR MALFUNCTION, AND USERS MUST BE AWARE OF THE RISK ASSOCIATED WITH ANY DATA TRANSMISSIONS (INCLUDING ELECTRONIC TRANSMISSIONS). CLINICAL TRIALS QUEBEC THEREFORE CANNOT GUARANTEE THAT SUCH DATA (INCLUDING PERSONAL INFORMATION) WILL NEVER BE INTERCEPTED OR SUBJECT TO OTHER INCIDENTS. IN ADDITION, EVENTS AFFECTING DEVICES AND SYSTEMS (INCLUDING THOSE USED FOR THEIR ACCESS AND CONTROL) MAY OCCUR, AND UNWANTED COMMUNICATIONS AND INVITATIONS MAY BE RECEIVED. IF A USER RECEIVES A COMMUNICATION THAT APPEARS TO ORIGINATE FROM CLINICAL TRIALS QUEBEC REQUESTING FINANCIAL INFORMATION OR ANY OTHER PERSONAL INFORMATION (OTHER THAN THE INFORMATION PROVIDED AS PART OF THE SUPPORT SERVICES), USERS MUST REFRAIN FROM RESPONDING TO SUCH A COMMUNICATION. CLINICAL TRIALS QUEBEC WILL NEVER REQUEST FINANCIAL OR OTHER INFORMATION IN THIS MANNER. IF A USER HAS DISCLOSED PERSONAL INFORMATION IN RESPONSE TO A COMMUNICATION, A POP-UP WINDOW OR A SUSPICIOUS WEBSITE CLAIMING TO BE AFFILIATED WITH CLINICAL TRIALS QUEBEC, OR IF ONE OF THE PREVIOUS EVENTS SHOULD OCCUR, THEN THAT USER MUST IMMEDIATELY CONTACT CLINICAL TRIALS QUEBEC.
If Clinical Trials Quebec has reason to believe that a privacy incident involving Personal Information has occurred, Clinical Trials Quebec shall take reasonable measures to reduce the risk of harm and prevent any new incidents from occurring. If that incident presents a risk of serious harm, Clinical Trials Quebec shall notify the Commission d’accès à l’information as well as any Users concerned by the incident. Clinical Trials Quebec may also notify any person likely to reduce such a risk (by only disclosing the required Personal Information). Lastly, Clinical Trials Quebec shall comply with other legal requirements.
Clinical Trials Quebec shall confirm the existence of any Personal Information it has regarding a User upon receiving a request to that effect by a person capable of making such a request, and shall disclose such Personal Information (by allowing the person in question to make a copy of it). Any person concerned may submit a correction request or exercise any other rights, as applicable, by contacting Clinical Trials Quebec and by complying with the applicable legal requirements.
Anyone may contact Clinical Trials Quebec for:
6.2.1 Questions, comments and inquiries: the Privacy Officer’s contact information is available here. Requests and inquiries will be dealt with expeditiously within the applicable legal time periods.
6.2.2 Unsubscribing from emails: this can be done at any time using the contact information indicated in point 6.2.1, or by clicking the unsubscribe link at the bottom of each email, or by responding to an email by indicating “Stop” or “Unsubscribe.”
If a provision is in conflict with any law or is not subject to enforcement, then it shall be severable from the other provisions and deemed to be rewritten so as to be valid and enforceable while complying, inasmuch as possible, with its initial spirit and scope.
Clinical Trials Quebec is not liable for any harm resulting from a case of force majeure.