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Although each organization has its own mission, patient organizations all share a common goal of advocating on behalf of their communities for better care and treatment to ensure better quality of life.
Patient organizations play an important role in Quebec’s healthcare system, including in the clinical research ecosystem.
Some organizations liaise between their communities and various health stakeholders such as:
Through this role, these organizations can, for example, provide information about clinical trials to their communities to facilitate their access to them.
To help modernize the healthcare system, patient organizations are developing programs to accelerate and facilitate access to innovation in care and treatment, including programs that support and fund research.
Through their advocacy, these organizations also help implement public policies that meet the needs of their communities. For example, patient organizations may submit comments and be consulted as part of the provincial evaluation of health innovations (drugs, blood products, medical devices, and so on).