Directory of Patient Organizations

The Association individually and collectively supports people of short stature to have their condition as disabled persons recognized: it works so that the rights of people of short stature are fully applied and recognized by the legislator.

Asthma Canada encourages self-management and prevention by helping our community take control of their symptoms. We do this through our extensive education and support services. Apart from our various programs like our Asthma & Allergy HelpLine, we also offer accessible evidence-based educational material like asthma basics and asthma management, which are available in our Get Help section at www.asthma.ca and regular educational webinars that connect asthma community members to new research, best practices, and the general education that is necessary to make informed choices about their health. As a national registered charity, all Asthma Canada information and programs are offered free of charge to people living with asthma and respiratory allergies and their caregivers.

Ataxia Canada – Claude-St-Jean Foundation is first and foremost a community of women, men, adults, teenagers, and children suffering from a hundred forms of ataxia, in all corners of the country. The Ataxia Canada – Claude St-Jean Foundation’s mission is to improve the well-being of people with familial ataxia and to support research. Ataxia is a degenerative neuromuscular disease that affects hundreds of young people in Quebec and Canada and is incurable to date.

The Ataxia Charlevoix-Saguenay Foundation’s mission is to discover and develop a treatment for the Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS).

Bladder Cancer Canada is the first and only Canadian patient advocacy organization dedicated to bladder cancer issues.

Brain Tumour Foundation of Canada is made up of a dedicated team of staff, volunteers and health care professionals, all working together for the same goal: End brain tumours. Our head office is located in London, Ontario. We are unique in that we work to serve the needs of Canadians affected by both malignant and non-malignant brain tumours. Hope and support are at the core of everything we do – whether it’s funding new and exciting research into brain tumour treatments, or bringing patients, survivors, and families closer together at our Brain Tumour Walk events and support groups.

CLL Canada is dedicated to enhancing the lives of Canadians affected by Chronic Lymphocytic Leukemia (CLL) and Small Lymphocytic Lymphoma (SLL) through education, advocacy and access to reliable information.

The Canadian Association of PNH Patients is a not-for-profit Canadian organization formed in 2009. The mission of the organization is to connect Canadians affected by Paroxysmal Nocturnal Haemoglobinuria and advocate for the best possible care for patients and ensure they are equipped with the most current tools and information to help them live well with the condition. The organization also provides support to caregivers, and works to increase awareness and understanding of PNH.

The Canadian Association of Psoriasis Patients (CAPP) was formed in 2012 to serve people impacted by psoriasis and psoriatic arthritis. CAPP’s mission is to be a resource to these people by improving their quality of life, raising awareness, providing education, advocating for better access to care and treatments, and supporting research.

CBCN is Canada's only patient-directed national breast cancer health charity. We strive to voice the views and concerns of breast cancer patients through education, advocacy activities, and the promotion of information sharing.

The Canadian Cancer Survivor Network was created by a group of Canadians concerned about cancer and cancer survivorship issues.

The CFA was incorporated in 2005 as a non-profit organization to raise awareness and educate the public about Fabry disease, a very rare life-threatening genetic, lysosomal storage disorder.