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Unless the context requires otherwise, grammatical variations of any defined term herein has a similar meaning and the singular includes the plural and the masculine includes the feminine, and vice versa.
In order to use the Services, Users will be required to provide information. As part of this process, each User will be required to select the Services they wish to use, consent to the use of those Services and consent to the sharing of their information. If a User is making a request on behalf of another person and chooses to provide personal information about that person, then the User must confirm that they have the right to provide that information. (A User who makes a search on behalf of another person does not have to include that person's name or other identifiers, and Clinical Trials Quebec does not wish to receive such information). The consent and information provided will be kept in the User's file.
3.1.1 Use of Services : In order for Clinical Trials Quebec to provide the agreed upon Services, including the report of research results, any User shall provide their first/last name and contact information, including an email address. In addition, each User must select : (i) certain search criteria, including the type of disease and clinical trial sought; and (ii) certain categories of information, including the sex and age group of the person for which the research is undertaken. Finally, any User will be required to provide certain additional information (e.g., the relevant city, health-care facility or postal code). The collection and processing of such Personal Information are required to provide the Services. A User may, at any time, modify the search filters (e.g., according to the evolution of their medical condition or location).
3.1.2 Continuous Monitoring Service : When a User wants to receive alerts on clinical trials, they will have to provide to Clinical Trials Quebec first/last name and email address. This Personal Information is required to allow the User to receive applicable updates. An update will be sent when a new result becomes available; if there are no results for a few consecutive months, Clinical Trials Quebec will contact the User to inform them of the situation. Depending on the type of alerts, a User may be required to provide additional Personal Information; this will be brought to the User’s attention prior to the collection of such information. Any User may unsubscribe from any alert at any time, as set forth in Section 7.2.2 below.
3.1.3 Comments, Questions and Requests for Information : If a User contacts Clinical Trials Quebec to obtain information regarding its Services or any other subject, such User will provide certain Personal Information (e.g., their name and email address). Such User may provide other Personal Information (e.g., their opinion). Clinical Trials Quebec will use this Personal Information to respond to their communication. This Personal Information may also be used for any Other Purpose.
If new services are made available, then additional collection and processing of Personal Information may be required. Clinical Trials Quebec will notify affected Users of this change in accordance with Section 8.2 below.
Certain platforms and technologies can provide information :
3.2.1 Google Analytics and Cyberimpact. Google Analytics may collect data about any User's interactions with the Services, the Website and the Content. This information will then be processed and updated each time a User interacts with them again. In order to do this, Google Analytics will place codes on the Services, Website and Content, which will allow Google Analytics to see which information has been accessed, as well as the browser and device used. Similarly, Cyberimpact's technologies may be used to obtain information on transmitted communications (e.g., to determine whether a result report has been consulted). The information so collected will be in a Depersonalized format and can be used for Other Purposes.
3.2.3 Information Collected through Cookies and Other Forms of Technologies. When a User accesses or uses the Services, the Content or the Website, certain data (including Personal Information) may be collected. This information includes data about the browser used, the Internet Protocol address and the clicks/interactions that have occurred. This collection will be done by the following Cookies:
Strictly Necessary Cookies: Strictly necessary cookies help services, content and the website to function properly, web pages to maintain their integrity and users to interact with functionalities. The website cannot function properly without these cookies.
Other forms of technologies may be used for the same purpose. Cookies and other technologies that are not required (e.g., Analytics Cookies) can be blocked without impacting the Services, Website and Content. Blocking those that are required (e.g., Process/Utility Cookies) may affect the use of the Services, Website and Content. These technologies and Cookies are temporary in nature and will disappear once the browser (or device) is closed. Anyone experiencing problems may contact Clinical Trials Quebec.
Clinical Trials Quebec has put in place measures to protect Personal Information that are reasonable, based notably on the sensitivity of the information concerned, the purposes for which it is to be used, the quantity and distribution of the information and the medium on which it is stored. These measures include the following:
5.1.1 Limited Access : Subject to applicable laws, access to any Personal Information is granted only to employees and representatives of Clinical Trials Quebec (and, where applicable, Authorized Subcontractors) who have a need to know such information and following the implementation of appropriate measures.
5.1.2 Privacy Impact Assessment : Clinical Trials Quebec has conducted a Privacy Impact Assessment of the Services as required by law. Clinical Trials Quebec conduct other Privacy Impact Assessments if other Services and features are added or when required by law.
5.1.3 Encryption in Transit : Whenever a User makes a request through the Services, an HTTPS protocol is used to transfer the information, and Secure Sockets Layer (SSL) technology protects Personal Information through server authentication and data encryption. Activation of this technology can be confirmed by looking at: (i) the browser bar, which will then, depending on the browser, display a padlock to the left of the website address (URL); and (ii) the URL or address bar of the browser, in which the first characters should change from "http" to "https".
5.1.4 Secure Data Centre : The Services are hosted on a secure and private platform provided by a recognized IT provider.
WHILE THE SERVICES AND THE WEBSITE HAVE BEEN CREATED USING TECHNOLOGIES OF MERCHANTABLE QUALITY, ANY TECHNOLOGY – JUST LIKE ANY OTHER SERVICE OR DELIVERY METHOD – IS NEVER INFALLIBLE OR FULLY PROTECTED AGAINST UNFORESEEN EVENTS, CYBER-ATTACKS (AND OTHER ILLEGAL ACTS) OR FAILURES, AND ALL USERS SHOULD BE AWARE THAT THERE IS A RISK ASSOCIATED WITH ANY TRANSMISSION (INCLUDING ANY E-TRANSMISSION) OF DATA. CLINICAL TRIALS QUEBEC CANNOT GUARANTEE THAT SUCH DATA (INCLUDING PERSONAL INFORMATION) WILL NEVER BE INTERCEPTED OR BE SUBJECT TO OTHER INCIDENTS. IN ADDITION, EVENTS AFFECTING DEVICES AND SYSTEMS (INCLUDING THOSE LEADING TO THEIR ACCESS AND CONTROL) MAY OCCUR, AND UNWANTED COMMUNICATIONS AND INVITATIONS MAY BE RECEIVED. IF A USER RECEIVES A COMMUNICATION THAT APPEARS TO BE FROM CLINICAL TRIALS QUEBEC REQUESTING FINANCIAL OR OTHER PERSONAL INFORMATION (OTHER THAN THE DATA PROVIDED ON THE FORM), THEN ANY USER SHOULD REFRAIN FROM RESPONDING TO THAT COMMUNICATION. CLINICAL TRIALS QUEBEC WILL NEVER REQUEST FINANCIAL OR OTHER INFORMATION IN THIS MANNER (SUBJECT TO PERSONAL INFORMATION SPECIFICALLY REQUIRED TO PERFORM THE SERVICES). IF A USER HAS DISCLOSED PERSONAL INFORMATION IN RESPONSE TO A COMMUNICATION, POP-UP OR SUSPICIOUS WEBSITE CLAIMING TO BE AFFILIATED WITH CLINICAL TRIALS QUEBEC OR IF ANY OF THE FOREGOING EVENTS OCCUR, THEN SUCH USER SHOULD CONTACT CLINICAL TRIALS QUEBEC IMMEDIATELY.
If Clinical Trials Quebec has reasons to believe that a confidentiality incident involving Personal Information has occurred, then Clinical Trials Quebec will take reasonable steps to reduce the risk of harm and to prevent further incidents. If the incident presents a risk of serious injury, then Clinical Trials Quebec will notify the Commission d'accès à l'information and any User affected by the incident. Clinical Trials Quebec may also notify any person who could reduce this risk (by communicating only the necessary Personal Information). Finally, Clinical Trials Quebec will comply with the other requirements imposed by the law.
Clinical Trials Quebec will confirm the existence of any Personal Information it holds about a User upon receipt of a request to that effect from an individual who is entitled to make such a request, and will provide access to (and a copy of) such Personal Information. Requests for correction or any other rights may be made by any person concerned by contacting Clinical Trials Quebec and complying with the requirements prescribed by law.
Anyone can contact Clinical Trials Quebec for :
7.2.1 any questions, comments and requests : The contact information of the Person in charge of the protection of personal information is available here. Requests and inquiries will be handled promptly and within applicable legal timeframes.
7.2.2 unsubscribing from alerts : This can be done at any time by using the contact information provided in Section 7.2.1 or by clicking on the unsubscribe mechanism at the bottom of each email or by replying to an email received with the word "Stop" or "Unsubscribe."
If any provision is in conflict with any law or is unenforceable, then such provision shall be severable from the remaining provisions, and shall be deemed rewritten so as to be valid and enforceable while preserving, to the greatest extent possible, its original intent and scope.
Clinical Trials Quebec is not liable for any damage caused by a situation of force majeure.