Patient Support

Directory of Patient Organizations

The Directory of Patient Organizations has been developed to facilitate access to resources for patients and their loved ones. It groups together a wide range of organizations dedicated to various fields of medicine. You can use the search filters to search for an association by name or by medical category.


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Oncology

Since 2000, Serenity Home has been offering professional services focused on the needs of people affected by cancer, people at the end of life and the bereaved, all in a context of unconditional welcome for them and their families.

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Geriatrics/cognitive degeneration Neurology

The Alzheimer Society of Canada is the leading nationwide health charity supporting people living with all forms of dementia, including Alzheimer's disease, as well as their caregivers and their families.

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Genetic diseases/rare diseases Neurology

The ALS Society of Quebec is a non-profit community organization whose mission is to support people touched by ALS and their families through every step of their journey. It also promotes and funds research, while raising awareness of the disease with the public, government and healthcare professionals.

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Hematology

In 1987, the concerned parent of a child with aplastic anemia founded the Aplastic Anemia Family Association of Ontario. One of the very first goals of the Association was to advocate for the formation of a national bone marrow donor registry in Canada. Today, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a seamless support network for every Canadian patient, family member, friend and concerned healthcare provider dealing with aplastic anemia, myelodysplasia or PNH.

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Rheumatology

The Arthritis Society is Canada's national charity dedicated to extinguishing arthritis. We represent the six million Canadians living with arthritis today, and the millions more who are impacted or at risk.

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Association d’acidose lactique du Saguenay-Lac-Saint-Jean
C.P. 592 Place Centre-Ville, Jonquière, QC, G7X 7W4
Endocrinology and metabolism Genetic diseases/rare diseases

Since 1991, the Association de l'acidose lactique, a group of families affected by the disease, has been formed. Candide Caron, the little mother of Maxime, who died of lactic acidosis, initiated this project to bring together parents who have children with or who have lost their child to this disease. They are few but thanks to this association, they feel less alone and they can now talk about their child, talk about their daily life with this disease to other parents who understand. They also get together to find ways to make this disease known and to raise funds for medication.

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Association de fibromyalgie et fatigue chronique de Vaudreuil-Soulanges (AFSFC-VS)
168 Avenue Saint-Charles, Vaudreuil-Dorion, QC, J7V 2L1
Neurology Pain

The AFSFC-VS is an independant community organization whose mission is to inform, reassure and support its members in order to allow them to regain power over their lives and to raise awareness among the general public and health professionals.

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Neurology Pain

The mission of the Association de fibromyalgie région de Québec is to help, support and promote the interests of people suffering from fibromyalgia.

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Neurology Pain

The Association de la fibromyalgie de l'Estrie was founded in 1993 by a small group of fibromyalgia sufferers. Thanks to the tenacity of several people who have served on the Board of Directors over the years. The organization's mission is to provide support to people living with fibromyalgia in the Estrie health and social services region, and to their loved ones, in order to develop the knowledge and tools they need to achieve wellness, while offering them a place where they can feel recognized and welcomed.

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Neurology Pain

The Association de la Fibromyalgie de l'Abitibi-Témiscamingue (AFAT) is a non-profit organization dedicated to helping people living with fibromyalgia. AFAT's mission is to help improve the quality of life of people living with fibromyalgia.

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Neurology Pain

AFAT's mission is to help improve the quality of life of people living with fibromyalgia.

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Neurology Pain

A non-profit community organization working in the Mauricie and Centre-du-Québec regions since its incorporation in 1993. The primary mission of the fibromyalgia association is to improve the quality of life of people suffering from fibromyalgia, as well as those around them.

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