Directory of Patient Organizations

Fighting Blindness Canada (FBC) helps drive forward research and the development of sight-saving treatments for blinding eye diseases. We are also an invaluable resource for individuals and families impacted by blindness, providing accurate eye health information through our website and educational events, as well as engaging with government and other stakeholders to advance better vision health policies.

The Fondation HTAPQ is a non-profit organization registered under Part III of the Companies Act since November 30, 2006. Mission: The Foundation improves the quality of life of people with pulmonary hypertension and their families through support and information.

Founded in 1987, Foundation Virage's mission is to provide support to cancer patients from the time of their diagnosis and throughout their care through services, activities and resources.

The mission of the Fondation En Coeur is to help congenital heart children and their families by providing information and support services. En Coeur also aims to raise public awareness of the importance of supporting children with heart disease and their parents.

FXFC is a national non-profit, tax-exempt organization administered by volunteers, all of whom are parents and health professionals. FXFC directly funds promising research aimed at treatment. Applications for research grants and postdoctoral fellowships are accepted on an ongoing basis and reviewed annually. FXFC promotes awareness of Fragile X. We publish a quarterly newsletter and information materials. We also hold fundraising events and organize parent advocacy groups across Canada.

We’re committed to improving the lives of people with gastrointestinal and liver conditions, supporting research, advocating for appropriate patient access to healthcare, and promoting gastrointestinal and liver health.

Groupe Espérance et Cancer is a non-profit organization, incorporated on May 9, 1991. Thanks to the involvement of many dedicated volunteers from the region, the organization was founded by people from our community. For local people, by local people. Our mission: To provide cancer patients and their caregivers with a living environment, a network of support and action, and activities to help them take charge of their lives and improve their physical and psychological quality of life.

The Groupe d'Aide aux Enfants Tyrosinémiques du Québec was founded by parents who wanted to give themselves the means to deal with their child's illness.

As a non-profit organization, the importance of supporting caregivers in their role is essential to the realization of our mission. In the face of the complexity of the health care system, the Groupe des aidants du Sud-Ouest provides a safety net for caregivers who are often forgotten. Our mission: To improve the quality of life of caregivers, prevent their exhaustion and promote their recognition and interests in the community.

We raise awareness of sex-positive inclusive sexual and reproductive health through the implementation of comprehensive education programs, while emphasizing HPV and its potential consequences. We empower culturally and ideologically diverse youth, families, and communities across the globe through the dissemination of critical, evidence-based knowledge.

Heart & Stroke is a leading funder of life-saving research, which has led to breakthroughs such as heart transplant surgery and a revolutionary stroke treatment that cuts the death rate by 50%. (™The heart and / Icon on its own and the heart and / Icon followed by another icon or words are trademarks of the Heart and Stroke Foundation of Canada used under license.)

Hope & Cope helps people cope with cancer. Guided by professional staff, cancer-experienced volunteers provide psychosocial support and practical resources that help patients regain a sense of control and well-being, reduce isolation and restore hope. Easily accessible and open to all, Hope & Cope is funded by the community and is located at the Jewish General Hospital’s Segal Cancer Centre and the Hope & Cope Cancer Wellness Centre.